Fact Sheets

In collaboration with regional and national Inuit organizations, an advisory group was formed in 2008, to discuss research ethics protocols and develop informative materials on research ethics. This committee is named Inuit Nipingit – National Inuit Committee on Ethics and Research.

Under the guidance of Inuit Nipingit, we prepared nine fact sheets in the Research and Research Ethics Fact Sheet Series. This series serves as a reference for research participants on a variety of topics. Fact sheet #1, for example, is about research and researchers in general, fact sheet # 3 is on consent and #8 is about permits and licences in Inuit regions.

Photo of caribou on the land, with the title Research and Research Ethics

 

Fact Sheet # 1

 

Research and Researchers

This fact sheet describes what research is, how and why research practices in Inuit regions are improving, who does research and for what reasons, and offers some basic decisions to be made when planning a research project.

 

EnglishNunatsiavut NunavikNunavut Syllabics |InuinnaqtunInuvialuktun

Fact Sheet # 2
 

Participating in Research

This fact sheet describes how earlier discussions about participation in research have lead to the use of various guidelines and rules for researchers to follow. It also discusses the rights that research participants have and the questions they might want to ask before getting involved.

Read the fact sheet…

 

Fact Sheet # 3

 

Individual Informed Consent for Research

This fact sheet explains one very important rule in research: seeking informed consent. It describes what formats consent can take, who can give informed consent, and what questions to ask before giving total or partial consent.

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Fact Sheet # 4

 

Benefits and Risks of Health Research

This fact sheet explains why we need health research. It notes that health researchers need to be clear to participants and communities about: expected health and other benefits; possible risks; and whether there are any financial benefits to participating in the research.

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Fact Sheet # 5

 

Privacy and Confidentiality in Research

This fact sheet explains that researchers are required to have informed consent from research participants. The researcher needs to include information on how personal and private information or knowledge will be used now or later on, and how it will be protected and stored. Terms such as ‘secondary use’ and ‘accidental disclosure’ are also explained along with other issues to be aware of.

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Fact Sheet # 6

 

Using Human Samples in Health Research

This fact sheets describes why some health research requires the collection of samples of body tissues and how this is regulated. It tells how researchers must seek informed consent, and how they are required to clearly explain possible affects of taking a sample and how the samples are to be used now or in the future, stored and destroyed.

Read the fact sheet…

 

Fact Sheet # 7

 

Sharing and Reporting Results

This fact sheet talks about how informed and respectful research includes communication with participants and communities before, during and after the research process. It describes good researcher-community relationships, notes the importance of making the expectations of both parties clear, and gives examples of engaging communities in interpreting and sharing the results.

Read the fact sheet…

Fact Sheet # 8

Research Permits and Licences

 

This fact sheet explains the existing requirements for researchers to conduct research in Inuit regions. A map of Inuit Nunangat, showing the four Inuit regions and their location within Canada, helps visualize which areas and communities are covered by regional permit and licensing requirements. The fact sheet advises on research-specific requirements and time frames, offers helpful reading materials and provides regional contact information.

Read the fact sheet… updated May 2010

Fact Sheet # 9

Guidelines for Research Involving Inuit

This fact sheet offers a brief overview of existing general and ethical guidelines for research involving Inuit. Web links to guidelines are also provided.

Read the fact sheet…